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Ricardo Guinea, Chair, Organising Committee. |
Placing the person at the center of the intervention is perhaps the
simplest way to describe the paradigm shift that the recovery model is
introducing on a large scale in contemporary care systems for people with
severe mental illness. That the person is in the center, has implications of
great importance that are worth highlighting.
What does it consist to be a person? It is a question more for a
philosopher than for a scientist. For Adela Cortina ("The frontiers of the
person", Taurus Ed 2009, pp.185), "we recognize as a person who has
the capacities required for self-consciousness, for the mutual recognition of
dignity, to act from freedom and assume responsibilities".
That this idea may be important is underlined by the fact that for many
years it was not the person but the disease that occupied the center of the
intervention of the models of attention. This is consistent with the way in
which reality presents the biomedical paradigm. Under the biomedical
perspective, there are things like schizophrenia or bipolar disorder, which are
-or should be- medical illnesses; then you have to treat them as such. From
this perspective, certain priorities are followed. If this is the case, to face
the problem it is necessary the person to be aware of the disease, it is
necessary to treat acute situations and do whatever possible to avoid relapses.
And for this, a systematic psychopharmacological treatment has shown to be the
most effective tool.
However, when studying the testimonies of the people actually recovered,
it was found that this idea did not meet the expectations of many of them. In
those testimonies, the idea frequently appears that the biomedical approach
tends to produce poor life experiences that are often empty of content.
That the person occupies the center, as the model of recovery preaches,
takes a different perspective. Recovering, according to one of the most cited
definitions, is a highly personal process to overcome and find a new meaning in
life, beyond the catastrophic effects of suffering from mental illness -
whatever that may be. To recover is to live a meaningful life, a life that is
worth living, a life in which the person has opportunities, in which personal
projects and preferences and personal choices really account.
Thomas Kuhn ("The Structure of the Scientific Revolutions",
1962) would emphasize that between the two versions there is the typical change
of theme proper to the paradigm changes in science. In this case it would be to
say that we have reached a certain point in which to work scientifically on the
idea of how to cure mental illness is a stalemate where we cannot see where
progress might continue. Then the typical turnaround of the paradigmatic change
occurs: since we do not progress on the idea of how to cure the sick, we consider
instead the idea of how to help them live a dignified life, a person's life.
Although sometimes presented as such, these two visions here outlined
are not completely antagonistic. The possibility of reducing the symptoms, even
partially, is very valuable so that they do not invade the whole life of the
person. Alleviating pain with drugs as much as possible is part of the best of
medical deontology, and is a tool that the medical art makes available to people.
The key, as is the case with any tool, is in how it is used. A drug can be -
and often is - a liberating element for the person who suffers, to the extent
that it facilitates being him or her and not the symptoms, the agent takes
control of life. Or otherwise it can be a mental anesthetic, that buries the
person after a semblance of serenity, as also often happens.
What is clear is that recovery is beyond the mere question of whether or
not to follow a certain procedure, be it pharmacological or other treatment.
Recovering is in connection with having real opportunities to get a job as a
way to participate in the community, with a decent accommodation, with not
being segregated or stigmatized by their mental diversity. And also, and this
is very important, with the responsibility of the person to use - and how to
use - those opportunities in their own and inalienable recovery process.
What is critical is whether the person is in the center or not, if
the help is offered in a way that empowers the person and not the other way
around. That is, in my opinion, a central point of the debates around the
notion of recovery that we will celebrate at the XIII World Congress. How each
actor is able to understand that framework of help from his singular contribution
- the professional, the family or the supportive network, peer supporter, the
person himself. How to foster collaboration frameworks from the mutual
recognition of capabilities, and manage the demands of control that, we should
not ignore, emerge frequently.
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Adela Cortina, Professor of Ethics and Political Philosophy at the University of Valencia, Spain. |
To help us situate the notion of person, which today is at the core of
the transformations of the care systems in most countries, we have invited
Adela Cortina, Professor of Ethics and Political Philosophy at the University
of Valencia, who has Kindly accepted to deliver the inaugural lecture.
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